Update and family visit

My pain clinic appointment has finally arrived after a bit of chasing. Only another week then hopefully they can help me out, as I could do without any more unnecessary surgery!

I'm still waiting on MRI results, they have my scan but won't give me the results without my notes, which are with the pain clinic, so I have to wait for over another week for them!

I've just spent a few days with family for my Mom's birthday, she is 42, so that makes me 21 again next month! ;-) We had a lovely meal and relaxing time catching up and lots of laughs which are always great therapy. Laughter is one of the best medicines. xx

I also finally met my pink sister Ally, from our online group who I've known for a year now, we had a lovely day together. So even though I have lost friends through cancer I am gaining some very special ones for life. xx

I've booked on a Yoga retreat to Goa India next year, travelling on my own which is something I've never done before and I've always wanted to go to India. Life is about doing what you want and living each day to the fullest. So to fulfil my life long ambition to roll in mud I'm also doing Pretty Muddy Race for Life. So I might take a while doing the 5k course as I will be to busy wallowing in mud he-he. If you would like to sponsor me click the link top right of this page. So now I just need to book this years holiday now, possibly the Canaries so I can save for India.

Happy Easter to those that celebrate. Eat chocolate anyway to those that don't :-)
Have a good weekend everyone xx

 

 

Another lovely dog walk.

How I feel every day!

My new hair do!

Happy Birthday Mom xxxx
 

Me, my Mom & Dad xxxx

Thoughtful gifts from my pink sister Ally xxx

Pelvic MRI scan

Hello everyone!

Well since my last blog I've finally had my MRI scan and I've got me a chicken fillet, so I look good in anything now haha! Let the bikini shopping commence :-) and no sarcastic comments please ;-) Still waiting for a pain clinic appointment though, think I'll chase that up tomorrow!

Had my MRI today of the pelvic area, as my Gynaecologist wants to see exactly what makes up the mass on my womb and ovaries, about a week for the results. Fingers crossed I just need an Oophorectomy, then I can get that out the way.

I've had my 2nd appointment for Scar Work Therapy, it's a really amazing treatment. My right scar is more skin toned than red now and the creases are so smooth. By the time I have my 3d nipple tattoos you probably won't see my scars at all! Also had Physiotherapy for my coccyx which I don't rate much, but not really sure if it's that or the medication that is helping as it is improving.

You'll be pleased to know as well as work I'm now managing to go out a bit more! The fatigue is improving slowly thankfully. So I've seen a few friends, done a bit of baking, walked the dogs and finally met a pink sister Samantha, whom I've spoke to via text all last year who doesn't have internet access like me. Just need to meet up with Sharon and all my online pink sisters at some point and have a good drink and catch up.

I've also been to a Breast Cancer support group, which is next door to work so very handy. It was lovely to meet other ladies locally, they meet once a month for an hour which is nice. It is such good therapy talking to those that have been there themselves.

I also went to the Good and New Clothes Sale hosted by 'For Rutland in Rutland', who support cancer and dementia, and hoping to get a bit more involved with them, in the hope I can help others who end up in my situation, as there isn't much in Rutland for cancer support.

Anyway I've waffled enough and I'm off out to see a film 'The Lady in a van' in the local pub. Have a good week one and all. xx

The lovely gown at today's MRI scan

The weekends dog walk

The hair is growing, but thinking of getting the sides
shaved again. I want it longer on top.



Fish n' Oat doggie biscuits

Banana & Walnut muffins

Chocolate chip cookies

Thank you to all my amazing friends for all your support over the last year xxxx

Genetic testing

Hope your week is going well...mine hasn't been too bad a week!  I've had my Genetics test, been to a concert, worked Sunday and been busy with month end. Also had various doctors appointments for injections and medication checks, plus my counselling.

My Gene test was today, feel better knowing that there is only a 10% chance I'm a BRCA1 or BRCA2 gene carrier and also that it still only means an Oophorectomy and not a Hysterectomy if I am. Sadly the results take 8-12 weeks! So a very long wait, but there is no change to the outcome of any on going treatment luckily.

I'm still waiting for an MRI scan to check out what they think is Endometriosis and hoping that it also only means I need an Oophorectomy. I'm also still waiting for a pain clinic appointment!

The concert I went to was Peter Andre and no I'm not insane, I've loved him forever. He's another great performer like Robbie Williams. I went with my best buddy Jan who shaved her hair off last year.

We have lost quite a few pink sisters recently and we want to assure those of you reading that are newly diagnosed that this is not the norm. It has been a hard few weeks in the cancer world for all my pink sisters and me. But today we are all staying positive and our word today is HOPE!

Tomorrow is my temporary prosthesis (chicken fillet) appointment at Hospital, so I can go on holiday and look good in a bikini...haha...that's assuming I lose all this gained weight from steroids!

My counsellor is wonderful, it's so great for cancer patients to be able to have somewhere to go where they can just let it all out! Please find her details below and at www.rutlandcounselling.com

A Poem by Jude P

Pardon me for thinking that this year has been the pits ...
One minute constipated, then the next I've got the sh**s
Scans, drugs and appointments are coming out of my ears
No time to sit and reflect, no time to voice my fears
I need an operation? Or two, or three or more?
Can someone stop this roller coaster and show me where's the door?

I don't recall the moment I signed up for all of this?
I just was happy in my life, ignorance was bliss,
I didn't know of others, never gave a passing thought
To those who went before me on this cancer juggernaut.
Then life changed in a heartbeat the day I found a lump,
My hands began to shake, and my heart began to thump!
How long ago that seems now! Yet it feels like yesterday?
So much has changed, forever, in a very special way.
I had the operations, the scans, the drugs and more!
That left me feeling battered, so tired, so sick, so sore!
I lost my hair, my eyebrows, my pubes and hairy pits
All small beer when compared to the fact I lost my tits!
But there are compensations! Bright spots to enjoy!
Little things now mean a lot and I'm not being coy!
I love to wake each morning, no matter how I feel
To know the joy of living, and of keeping feelings real!
Take pleasure in the small things, appreciate your life
Above all love your family , husband, partner, wife.
Remember too to look for , the joy in every day
The support you get from people who you met along the way
The laughter in the chat room, the friends, new friends, for life
Are all bright spots to look for, they're the joy in times of strife,
So cancer may be scary, may cause some fears and pain,
But with the help of your pink sisters, you will soon be smiling again.

In memory of Jojo, Rosie, Kate, Lesley, Lisa, Julie, Alison, Margaret, Danielle & Ann. R.I.P.